July 20th, 2014 → 2:39 pm @ Seth Mnookin
In this week’s New Yorker, I wrote about NGLY1 disorder, a new genetic disease first identified in 2012. Bertrand Might, a six-and-a-half-year-old boy who lives in Salt Lake City with his family, was the index patient, and I began reporting the story not long after Bertrand was first diagnosed just over two years ago.
I learned about Bertrand’s story after reading a blog post his father, Matt Might, had written about the family’s diagnostic odyssey. I got in touch with Matt a few days later, and since then have spoken with him and his wife, Cristina, dozens of times, usually for hour long Skype sessions. I’ve visited the Mights in their home, have met Matt’s and Cristina’s families, and have had Matt over to our house in Boston for dinner. I’ve even sung duets from Frozen with their adorable daughter, Victoria. They are truly a remarkable family. They’ve endured more than most people could imagine and somehow remain simultaneously relentless and upbeat. They also happen to be two of the kindest, most generous people you could meet. (more…)
July 26th, 2011 → 8:02 pm @ Seth Mnookin
Mahalo, the “human search engine” with the motto “Learn anything,”^ has asked me to take part in their “ask me anything” author video series. If you have a question you’d like to throw into the mix, put it in the comments of this Reddit thread before tomorrow, June 27, at 4pm Eastern time.
I’m sure there’ll be lots of questions about The Panic Virus, but as the name of the feature indicates, it’ll cover pretty much everything — and some of the questions posted up there so far have to do with the future of print media (a topic I write about in this week’s New York magazine) and the common threads between my books. I’ll be answering some of the most interesting queries via Skype; the video will be posted sometime in the next week.
^ Mahalo is a Hawaiian word that actually means “thank you.” If you haven’t previously checked it out, there’s an explanation of how the Mahalo Answers work here and the answers to some other Mahalo FAQ over here.
June 11th, 2011 → 11:16 am @ Seth Mnookin
I have a piece in tomorrow’s Washington Post Outlook section titled “An early cure for parents’ vaccine panic.” It outlines some thoughts I have about implementing a standard pre-natal appointment for parents to discuss vaccines and vaccine safety. In a recent post on my blog at the Public Library of Science, I started what I hope will be a fruitful back-and-forth for doctors and parents to share their thoughts on the issue. Check it out — I’d love to hear what you think.
Post: Parents and pediatricians: Do you think a pre-natal discussion about vaccines would help assuage fears? (The Panic Virus Blog, The Public Library of Science.)
May 29th, 2011 → 8:12 pm @ Seth Mnookin
At the end of April, I moved my blog to the Public Library of Science’s Blog Network. Since then, I’ve been trying to figure out the best way to keep readers of this site informed about what’s going on over there. There doesn’t seem to be any elegant solution…at least that I’ve been able to figure out.
May 26th, 2011 → 12:53 pm @ Seth Mnookin
According to the Seattle Post-Intelligencer, Washington State has one of the highest school-immunization exemption rates in the country — and the current measles outbreak that’s spreading across the country has reached there as well.
Today at 1:35 pm PST, I’ll be on KOMO-Newsradio AM 1000/97.7 FM to talk about the ways in which declining vaccination rates have contributing to the situation. If you’re not in the station’s broadcast range, you can also listen online.
May 24th, 2011 → 11:58 pm @ Seth Mnookin
Earlier today, the CDC released a report about the measles outbreaks that have been occurring across the country since the beginning of the year. (Hat tip to USA Today‘s Liz Szabo for this story.) One reason measles outbreaks are so scary (and so difficult to contain) is that measles is the most infectious microbe known to man–it’s transmission rate is around 90 percent. It has also killed more children than any other disease in history.